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This section is a place to share stories about Living with Interstitial Cystitis
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Social Security Disability
by: Holly
on Thu, Feb 21 2008
I have suffered with severe IC for over 3 years. I am 48 years old, and urinate at least 40 times per day. I am awakened at least 7 times during the night. I have an InterStem Implant to help ease the pain, but even though I have had the settings adjusted many times, it barely works. I currently live on pain meds, all other medication has proven ineffective. I am waiting for medical science to catch up with this illness. I filed for SS benefits and after being denied twice I was finally “fully approved” for benefits. If IC has disabled you don’t hesitate to apply. Get a disability lawyer. Do not give up!
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February 2008
- Major Carwreck At Wal-mart shopping center in Lucedale, Ms - by Terry - (Tue, Feb 26 2008)
I had just went to see my son a Wal-Mart, it was his first day on the job so I wanted to talk to him about it. It was beginning to rain, we had been talking to a pastor’s wife and daughter we knew when the rain became heavy.
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- Still living with the pain of Ic! - by Terry - (Mon, Feb 25 2008)
I got the interstim implant put in and at first it was a life saver, but now I am back in the same pain as before, I truly have began to notice that stress plays a major role in IC!!
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- Social Security Disability - by Holly - (Thu, Feb 21 2008)
I have suffered with severe IC for over 3 years. I am 48 years old, and urinate at least 40 times per day. I am awakened at least 7 times during the night.
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- Possible Link to IC: Birth Control Pill - by Stephanie - (Thu, Feb 14 2008)
Over the past year and a half I have been diagnosed with five UTI’s or Bladder Infections, on the fifth time I went to my doctor in extreme pain, they concluded that I see a urologist and mentioned something about IC, after I saw the Urologist he concluded that I should wait some time to have a procedure done to conclude IC, but that I have all the symptoms for IC.
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- Question about IC - by DJB - (Mon, Feb 11 2008)
I have been told to see a urologist regarding IC. I am going to do that. I was told about a year ago that had IC. Until recently I have felt like everytime I sit down I am sitting on a marble internally.
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- Mom, wife living with IC - by Jen B - (Thu, Feb 07 2008)
I am a 30-year-old wife and Mom of 2. My IC first started around the time I got pregnant with my first child. It wasn’t until 4 years later (after my second child was born) that I was diagnosed. I though it was just ovarian cysts and recurrent bacterial vaginal infections.
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- Help - by Brenda - (Mon, Feb 04 2008)
I just got diagnosed with IC last week by my urologist I am so miserable and afraid. This problem has already severly uprooted my life. Not sure I can even hold my job.
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- interstitial cystitis - by Mary - (Mon, Feb 04 2008)
I think i have interstitial cystitis, the doctors havent actually done the test yet, but they said they think that could be it, because i burn so bad, but i dont ever have a urinary tract infection
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- My Husband Was Crazy! - by Bama in Missouri - (Fri, Feb 01 2008)
Our story begins back in 2000, my husbands Grandmother had just died from luekemia [leukemia] in April and in May all of a sudden my husband started having pain in his back and numbing of his legs, along with spasms everywhere. We started out with our family physician and he sent us to a Urologist. My husband was diagnosed with prostatis [prostatitis].
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