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Living with Neuropathy

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Without help


by: LRO on Mon, Jul 02 2007

After a car accident I started having a headache. The next day I hurt so bad I truely never would have imagined. The softest touch and I would leave out a blood curdling scream. After the accident I could hardly talk, but since there was no blood nobody thought much of the problem. I was so out of it I couldn’t even call my home phone. I was left at the accident site without a ride because I could not communicate. I hurt so bad I couldnt move. I had loss of bladder and bowel. I would have thought at least my husband would take me to the hospital.

I still hurt on most of my body. Neurologist number one told me he couldn’t see anything wrong with me and told me that I was old. Neurologist number 2 tried me on many different meds with either no reaction, short lived reaction, or a severe reaction. So far the Pamelor works for the pain the best with trileptal for the spasms.

I’m 43 this week and I can’t imagine that I have to live with the pain of neuropathy the rest of my life. Water arobics helps tremendously but I’ve done my best to be functional again. The pamelor constipates me and the trileptal causes one to retain water so the bowel and bladder problems have improved with meds. My blood pressure has frequently been 197/107. I finally gave in and started on blood pressure pills because I am now starting to have palpitations. Other than neurologist #2 I have had little help.

It does help to hear that someone else actually understands what I mean when I say that I actually hurt “everywhere”. I know my husband doesn’t understand how much the exercise helps to not have the severe pain in my feet. The throbing body parts at night is a bit much to handle. I’ve tried quite hard to not have pain relievers in my home because I do have teenagers and I have been afraid they’ll be tempted. Any great ideas please post… I’d love to be truely functional again.

Comment on this

Comments
  1. Tue, Oct 02 2007
    Sorry to hear your story......my name is james from dublin and i'm 40 y.o. I too have the agonising experience of severe foot pain......sometimes they...Read

July 2007

  • living with this awful problem - by Amber - (Tue, Jul 31 2007)
    I am 27 years old, very young of course, and started to have serious pain problems about four years ago. They tested me for everything and found that I had bad knees. 2 years after my surgeries ( on both knees), I started to lose feeling in my legs to the point where I burnt myself on a heating pad. [more..]
  • Neuropathy/RLS; walking seems bouncy - by JEAN - (Mon, Jul 30 2007)
    I am 75 and have been suffering with restless leg syndrome about 2 years. It is relieved by taking Mirapex, nortrytoline and folic acid, all prescribed by my neurologist. [more..]
  • too much pain - by sara - (Sun, Jul 29 2007)
    i am 32 and have been numb on right side of body 5 years now. [more..]
  • hysterectomy neuropathy - by beth - (Sun, Jul 29 2007)
    i had a vaginal-laparoscopic hysterectomy in june 2006 and have had severe leg pain since-i’ve been on neurontin, cymbalta, had epidural injections in my back, acupuncture and 12 physical therapy sessions [more..]
  • Neuropathy - by SN - (Sat, Jul 28 2007)
    I am now 27. I was diagnosed with Neuropthy [Neuropathy] when I was in my early 20’s. At any point in time, I get a shooting pain in my head that feels like someone has hit you on your head with a hammer. [more..]
  • PERIPHERAL NEUROPATHY - by PATRICIA - (Fri, Jul 20 2007)
    I am 61. Has always been active. got up,one day, jan/2007 and couldn’t walk. now july, still in chronic pain, just had a epidural, still in pain. my neurophy is worse since my injection. help! [more..]
  • Neuropathy Pain - by PW - (Sun, Jul 15 2007)
    After retirement I had to have back surgery. No big deal I could jump back after surgery. I was strong, and healthy. I knew I could recover quickly, but as I worked hard to get the strength back, I discovered the tingling and pain from my private area all the way down my legs to my feet. [more..]
  • Without help - by LRO - (Mon, Jul 02 2007)
    After a car accident I started having a headache. The next day I hurt so bad I truely never would have imagined. The softest touch and I would leave out a blood curdling scream. [more..]
  • NEUROPATHY - Natural Treatments Helped Me - by BUNNY - (Mon, Jul 02 2007)
    Been active and constantly busy always. But food and nutrition was the last thing on my mind. Now at the age of 52 after the golf ball hit my ankle bone my trouble started with pain in the ankle [more..]
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