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Living with RSD

This section is a place to share stories about Living with RSD

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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December 2009

  • Living with RSD/CRPS for almost 12 years - by Donna - (Mon, Dec 21 2009)
    It’s been a long journey, but a very learning and trying experience. For anyone who has a workers’ comp. injury, take note of the information you are able to find and be very aware of it when being treated by a doctor. Some doctor’s are not as familiar with RSD as one that treats this disease on a regular basis. [more..]
  • The sadness of living with RSD - by Sally - (Thu, Dec 17 2009)
    Hi.. My Name is Sally. I am a 57 year old mother of three and grandmother of seven beautiful grand children that basically keep me going. I was a medical transcriptionist for 15 years, and due to the repititous movements of typing I developed carpal tunnel syndrome in both of my hands and wrists. [more..]
  • Trying to understand RSD - by Chrystal - (Thu, Dec 17 2009)
    I am not very informed about this thing that I have been told I have by my doctors ‘RSD’.My story began one year ago when my hand was crushed,also cutting off two of my fingers. [more..]
  • RSD 15 YEARS - by Judy G - (Wed, Dec 16 2009)
    I got RSD from back surgery in 1995. Had 3 of them In two weeks time.I have been In alot of pain..I have had blocks for my feet and now my hands.It has spread Sure not fun. [more..]
  • RSD. . . Thankfully a diagnosis, I’m not crazy! - by Kelly B - (Wed, Dec 16 2009)
    Hello, My name is Kelly and I am a 43 year old woman recently diagnosed with RSD My story begins in Dec. of 2007 when I was working as a health care aid in a senior’s home. While lifting a rather large patient from a laying down to a seated position, I felt a pull in my left groin area. [more..]
  • IT’S BACK - by Kathy R. - (Wed, Dec 16 2009)
    After a MVA in 1997 I had hand, neck and back surgeries. In 2001 I had surgery for “double crush syndrome” on both hands. Caused by a strong jerking while holding the steering wheel when I was rear-ended at 40mph. [more..]
  • complex regional pain type 1 - by Mary - (Tue, Dec 15 2009)
    My story starts with symptoms of carpal tunnel. I was being treated for carpal tunnel syndrome back in Feb. 2009. All the tests came back negative but the doctors thought that I could still have a underlying carpal tunnel syndrome. They sent me to physical therapy and I got worse not better. [more..]
  • trying to live with RSD - by CF - (Tue, Dec 15 2009)
    In 2007 I tripped over a box that was on the floor at my (previous) college’s bookstore. I thought that I would be ok and tried to go to work the following day. The pain was so bad I had to go home early and have not been able to work since. [more..]
  • LIFE WITH RSD! - by dan - (Tue, Dec 08 2009)
    due to operations on my left leg,and right leg. below the knee cap,i have pain in left leg at all times sharpshooting,at times feels like needles being poked in leg.burning at times and the feels like frost bite. [more..]
  • A Dark Journey: Alone - by peadeej - (Tue, Dec 08 2009)
    My story is complicated, as it is only possible to tell by surviving this long, painful, lonely RSD(CRPS) journey. You see, I was diagnosed back when the disease was named “RSD” [more..]
  • Burning in toes - by N B D - (Thu, Dec 03 2009)
    The burning starts on the side of the little toe and then goes to the index toe that I broke back in late 2007, it keeps me awake many hours a night, and cannot stand the sheet touching that small toe, [more..]
  • Things that have helped me - by Steven - (Wed, Dec 02 2009)
    I was diagnosed with CRPS (Complex Regional Pain Syndrome) or RSD in August 2009 after breaking my right ankle in June 2009. The pain was unbearable, with the orthopedic surgeon removing my cast after 1 week, due to the swelling and the burning sensation of the cast on my ankle. [more..]

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