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This section is a place to share stories about Living with RSD
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story.
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January 2010
- RSD - by TERRY - (Wed, Jan 27 2010)
I have severe pain in my left toes.. Feels like 500 lbs on my toes and i cant move them at all or even have a sheet on them and it feels like its burning like on fire and feels like im gettin shocked also
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- New RSD/CRPS diagnosis - by Shannon - (Fri, Jan 22 2010)
I recently had carpal tunnel release and ulnar nerve surgery. The second day after the surgery I knew something was wrong. I have had other surgeries and knew it wasn’t the same.
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- 10 knee operations in 14 years - by SS - (Tue, Jan 19 2010)
Hi everyone..I am 57 and was born with ’subluxing patellas’. Had left knee repaired..no problem..BUT..it took 14 years and 10 open knee operations to finally stabilize right knee, and now RSD
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- Fractured Toe = Human Torch - by Thomas - (Fri, Jan 15 2010)
On August 20, 2009 while playing with my son in the beautiful ocean at Virginia Beach my little toe was fractured as I tried to save him from a rip current. So what I broke my little toe, I thought.
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- Living with RSD - by April - (Thu, Jan 14 2010)
Hi,
I have RSD, and I got it one day, and it is in my feet. And It is so painful,and my feet turned beet red. And so I put my feet in ice to cool them down, and they begain to frostbite on them.
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- rsd - by Diane - (Tue, Jan 12 2010)
Hi, I just wanted to say about a 1& 1/2yrs. ago my daughter had a freak accident which left her with rsd among other problems.She has been struggling with severe burning pain,
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- Whats next with no insurance?? - by ladiebuggg888 - (Mon, Jan 11 2010)
I am 35 years old. i am a mother of 3 beautiful daughters. But…. i don’t get to be much of a mom. i used to be a truckdriver and work extremely hard for my family. i fell out of the truck. about 11 months later i was driving and my arm started itching so badly that i stopped by a truck stop and bought a scourer that
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- RSD/Dialysis / Cyst. - by Janice - (Mon, Jan 11 2010)
I have been living with R S D for over ten(10)yrs.In September of 09 my kidneys started going bad(due to high blood pressure) and have too go on dialysis 3 times a week.
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- RSD/CRPS &plantar fasciitis together - by Judy - (Mon, Jan 11 2010)
My name is Judy one year ago this month in Jan.o9 I broke my fifth bone in my left foot in cow holes and created RSD/CRPS and Plantar Fasciitis I’m still in a boot and still go to phy.ther.and I have a good PT
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- Trying to live with CRDS. - by Virginia - (Mon, Jan 11 2010)
Hi My name is Virginia and I am a 44 year old mother of two young children and have a very hard time with this disease. I had a nerve release done at my elbow and things went down hill from there.
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- Coping with RSD - by DM - (Thu, Jan 07 2010)
Hi my name is Donna, I was diagnosed 6 years past in october and it never gets any easier. I wrok full time and my employer’s haven’t got a clue how to help me when needed, as this condition is not fully understood or advertised most people including doctors think the pain is in your head.
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- My dad and his RSD - by Sara - (Thu, Jan 07 2010)
My dad has had RSD for almost 15 years now. I was six when this happened, he was 33, so I’ve grown up with the doctors offices, the surgeries and the frustration.
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- Life can be good - 13 yrs after diagnosis - by SG - (Thu, Jan 07 2010)
In 1996, I was in an auto accident which crushed my left arm in 71 pieces, damaging many of the nerves. The swelling and pain was incredible. I expected the paid to go down day by day, but it didn’t, instead it got worse.
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