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Living with Trigeminal Neuralgia

This section is a place to share stories about Living with Trigeminal Neuralgia.

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left side face pain
by: JA on Tue, Mar 17 2009
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I started off with a headache in october and after 2 weeks, it went to my left side. Thinking it was allergies, I waited it out. One morning I woke up with my left jaw and teeth killing me. I went to the doctor at lunch figuring it was now a sinus infection. I was told that no, it was trigeminal neuralgia. I was also diagnosed by a neurologist, but after taking gabapentin, and many other drugs, nothing has changed. I stopped taking everything and was sent to the UCLA oral facial pain center. They think that part of the problem is that I am constantly grinding and clenching my teeth against the pain. They also see that my left side of my face is droopy and that my sclera is swollen. They gave me an NSAID to try as they feel it is very similar to a type of specific migraine I am going to have more testing but the time in between is taking it all out of me. Now, I am fighting depression as this seems never ending and very exhausting. I still drag myself to work but am finding it hard to focus.


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  1. Sat, Mar 21 2009
    my wife Becki has been the hospital since Tuesday morning diagnosed with TN and has been on painkillers and nerve blockers but it is not working. I do...Read

March 2009

  • left side face pain - by JA - (Tue, Mar 17 2009)
    I started off with a headache in october and after 2 weeks, it went to my left side. Thinking it was allergies, I waited it out. One morning I woke up with my left jaw and teeth killing me. [more..]
  • Living With The Agony Of Trigeminal Neuralgia - by Lynda - (Tue, Mar 10 2009)
    I was diagnosed with Trigeminal Neuralgia over 5 yrs ago while pregnant with my son. [more..]

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